6 - Friday, April 19, 2013
Rebif update - Afer the disaster at Shoppers Drug Mart this past Monday... When I got home I sent off an email to Barbie, Dr. Sarah's (my neurologist) receptionist. They were acting on it within minutes. Now I have my Rebif Support Card and it is all set up - so my Trillium Drug Plan is fixed like it was with Copaxone. I wonder out loud why Shoppers did not recognize my situation, know something was wrong, and try to help out last Monday..........anyway..........
My Rebif nurse Alison made her 3rd special trip to see me all the way from Mississauga yesterday (Thurs.)
So between Alison and Dr. Sarah, they have now set me up on a couple of months of 50% doses. I am just so scared of the side effects of the 100% dose, even after being weaned onto it. I start tonight... wish me well.
I went to the MS self-help group meeting this morning (Friday) and I needed a wheelchair once inside... this is getting downright scary. My friend Manon and her husband Gerry were such a help, I appreciate it so much. It is so nice now to have good understanding friends... and they aren't even presenting themselves as Christian Ministers... LOL (private joke), but would put the Christian Minister to shame.
Now, thankfully I am free from any obligations for a few days.
Glenn
Friday, 19 April 2013
Tuesday, 16 April 2013
New Chapter (April 16, 2013) - noon
Hello again all... just had to blog about my great morning this morning... lol lol
I thought that I had it in me to go over to Shoppers Drug Mart this morning and pick up my latest script for Rebif. I had managed to get over twice before this month to get other prescriptions. They told me that it was quarterly deductable time again. When I was on a Copaxone injection per day, the Copaxone folks picked up all of my Trillium Plan deductable except $100/year or $25/quarterly. On a very limited CPP Disability income, I could then handle the cost of all my meds. Then I got switched over to Rebif instead of Copaxone. The first time I went into Shoppers I was charged my $25 quarterly deductable... fine. About 2 weeks ago I picked up another med and was charged $45 towards the deductable. Miffed, I paid it. Then this morning I went over to pick up the latest Rebif script and they wanted another $25 deductable payment. I refused. I quit.
Then, I tried to shop a bit because it was a points day at Shoppers. My left leg absolutely quit working about half way. I finished by holding on to shelving in the store. I made it to the checkout, but got in line behind a poor lady also with MS, but in a wheelchair and she wanted to discuss with the clerk about not getting vouchers she should have gotten months ago. This went on for 10-15 minutes, I almost passed out. Then a nice young man got me a chair to sit on, and also took my stuff to the car for me. I went through the Timmys drive through across the street and picked up a coffee. I drove back home, but had to sit in the parking lot and drink the coffee there.
From the car to the front door took me 30 minutes (about 50 feet). About 10 feet away I got some help... a man took my grocery pull cart and brought it in and up to my apartment, and a very nice lady got me a wheelchair that we have in the laundry room and took me up to the apartment. Now, just a long rest, a short nap, and I'll be almost back. I have contacted my neurologist (email) about the finances and she is getting back to me later.
Still smiling
Glenn
I thought that I had it in me to go over to Shoppers Drug Mart this morning and pick up my latest script for Rebif. I had managed to get over twice before this month to get other prescriptions. They told me that it was quarterly deductable time again. When I was on a Copaxone injection per day, the Copaxone folks picked up all of my Trillium Plan deductable except $100/year or $25/quarterly. On a very limited CPP Disability income, I could then handle the cost of all my meds. Then I got switched over to Rebif instead of Copaxone. The first time I went into Shoppers I was charged my $25 quarterly deductable... fine. About 2 weeks ago I picked up another med and was charged $45 towards the deductable. Miffed, I paid it. Then this morning I went over to pick up the latest Rebif script and they wanted another $25 deductable payment. I refused. I quit.
Then, I tried to shop a bit because it was a points day at Shoppers. My left leg absolutely quit working about half way. I finished by holding on to shelving in the store. I made it to the checkout, but got in line behind a poor lady also with MS, but in a wheelchair and she wanted to discuss with the clerk about not getting vouchers she should have gotten months ago. This went on for 10-15 minutes, I almost passed out. Then a nice young man got me a chair to sit on, and also took my stuff to the car for me. I went through the Timmys drive through across the street and picked up a coffee. I drove back home, but had to sit in the parking lot and drink the coffee there.
From the car to the front door took me 30 minutes (about 50 feet). About 10 feet away I got some help... a man took my grocery pull cart and brought it in and up to my apartment, and a very nice lady got me a wheelchair that we have in the laundry room and took me up to the apartment. Now, just a long rest, a short nap, and I'll be almost back. I have contacted my neurologist (email) about the finances and she is getting back to me later.
Still smiling
Glenn
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